Hi Y'all
 I have MS with badly stiff/spasming leg muscles and  Baclofen in tablet 
form has lost its effectiveness :-(  I'm now on the waiting list for an 
Intrathecal Baclofen pump to be surgically implanted.  I know what is 
involved but have many questions/concerns/fears that the "|NHS machine" has 
not really addressed beyond "Don't worry, It'll be alright on the night" 
There has been little or no info beyond the basics which I already know from 
the UK MS Society. I would be interested to hear from anyone who already has 
such a pump and knows what living with it is like.

Best wishes
Dave

On Sat, 25 Jul 2009 16:12:48 +0100, "Dave"
 wrote:

>Hi Y'all
> I have MS with badly stiff/spasming leg muscles and  Baclofen in tablet 
>form has lost its effectiveness :-(  I'm now on the waiting list for an 
>Intrathecal Baclofen pump to be surgically implanted.  I know what is 
>involved but have many questions/concerns/fears that the "|NHS machine" has 
>not really addressed beyond "Don't worry, It'll be alright on the night" 
>There has been little or no info beyond the basics which I already know from 
>the UK MS Society. I would be interested to hear from anyone who already has 
>such a pump and knows what living with it is like.
>
>Best wishes
>Dave 
>

Dave,

I was told that I needed to have a pump about five years ago but I
didn't like idea. Instead I went my own way and slowly reduced the
Baclofen. The leg spasms were quite bad at times but easily relieved
by a puff or two of cannabis with no tobacco. After I got down to a
single 10mg Baclofen thing were much better. On bad days I take a
larger dose.

Steve