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group : uk.people.support.cfs-me      view archive
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The Feel Bad Factor     Tue, 2 May 2006 01:15:54 +0100
A quote from 'Press Briefing on Chronic Fatigue Syndrome' " using instruments like the **medical outcomes survey short form 36***, which are good, validated, and replicable measures of basically functional impairment, people with CFS--and, again, CDC has published this, as have others in clinic setting ...

CDC Research and GET     Tue, 2 May 2006 01:02:58 +0100
If as is proposed by CDC , CFS is a genetic inability to handle stress and that a major feature of CFS stress is the unavoidable inability to cope with and recover from exercise ,and when the research shows that severity of illness depends to a large extent on Allostatic Load or stress load ,then surely ...

Dr Simon Wessely, the next Dr Shipman?     Mon, 01 May 2006 14:22:32 GMT
After reading the text of evidence in House of Lords debates, I have to ask; Why is Dr Simon Wessely not behind prison BARS, never mind still practicing medicine? Not since reading of the diabolic cruelty, arrogance, and inhuman work or Dr Jospeh Mengele, have I ever heard of such foulness. To whit, the c ...

Heart pain and breathing dificulties     Sun, 30 Apr 2006 12:35:23 GMT
Anyone else experienced pains around the heart, and doifficulty breathing with CFS? last 6 months been gettign worse, GP listened to my heart...seemed ok. But couple of months ago when I had a flu, breathing got a lot worse, doc gave me inhaler, as airways were inflammed and I was wheezing. Not too happy wi ...

'pooter probs     Wed, 26 Apr 2006 23:03:14 +0100
Having to work around some bugs to start OE so may be offline for a while. The good news is I have found some help and the man is coming round tomorrow to help me set up my new Media PC and digital television. :o) -- Spencer Manchester UK "I turn around \ (it's fear) \ I turn around again\ (it's ...

ME Awareness Info - 25% ME GROUP     26 Apr 2006 14:45:24 -0700
[Simon Lawrence of the 25% ME Group asked me to post this around which I've no problem with as I think this group does some great work. Tom] PERMISSION TO RE-POST Hi Folks We are sending an electronic mailing to ME Support Groups in-order to assist in raising awareness of severe ME and to aid you i ...

Any suggestions?     24 Apr 2006 08:33:10 -0700
Hi All! I was wondering if anyone could give me some advice on what I can do to help my friend who suffers from MS. She's only 19 but this illness has been plaguing her for the past 3/4 years and it really gets her down. Sometimes she can't even leave the house and whenever she seems to make any progress she ...

thiscureworks.com     22 Apr 2006 15:19:15 -0700
Hello, A while ago there was some discussion here about the site: thiscureworks.com - http://groups.google.com/group/uk.people.support.cfs-me/browse_thread/thread/e7f6c0cc58365c55/fa80f3502a66140d?q=thiscureworks&rnum=1#fa80f3502a66140d I just thought I'd let you all know that I've taken the plunge and am c ...

US research shows gene factor sin CFS     Sat, 22 Apr 2006 10:38:07 GMT
sound smuch like the SAME thing that was discovered here in the UK a year ago? http://www.medpagetoday.com/Neurology/GeneralNeurology/tb/3130 ...

No Help     Sat, 22 Apr 2006 08:45:43 +0100
The relapses are getting longer. This one is 8 weeks so far. I cannot get any help at all. Been up all night again. Headache, backache, constipation etc. etc..... -- Spencer Manchester UK If you are sitting, just sit. If you are walking, just walk. Above all, don't wobble. ...


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